White Rose Adventures

Craig Goodroe is a 15 year old boy that I, and many other bikers, met today, and he LOVES bikes. Craig suffers from a hereditary disorder called Hereditary Hemorrhagic Telangiectasia. His remaining time is short. The doctors have told Craig and his family that his disorder has progressed to the point that they can not do anything more for him.

Hereditary hemorrhagic Telangiectasia (HHT or Osler-Weber-Rendu syndrome) is a rare inherited disorder characterized by malformations of various blood vessels (vascular dysphasia), usually resulting in excessive bleeding (hemorrhaging.) Chronic nosebleeds are often the first apparent symptom associated with hereditary hemorrhagic telangiectasia. Malformation of various blood vessels may result in abnormalities affecting various organ systems of the body including the lungs, brain, and liver. Hereditary hemorrhagic telangiectasia is inherited as an autosomal dominant trait.)”

When I met several PGR members for the Veterans Day Parade last week, I heard one member talk about this boy that was dieing, and how one of his last wishes was to ride a bike. There was no debate as to weather we would make this young mans wish come true, it was just a given. Emails were sent out, phone calls made, and this morning members of the PGR, along with members of the Christian Motorcycle Association gathered in Mcgee, MS to make this wish come true.

It wasn’t an official PGR mission, but what can I say. When you have a group of very patriotic, loving, and giving American’s like we do in the PGR, and you mention something like this, there are going to be MANY of us there!

Some started from the coast at Gulf Port. I and several others joined them at Hattiesburg. We met many others at the WalMart in Mcgee.

There were 60 bikes, 1 cage, and 72 people that showed up to make Craig’s wish come true. When we all arrived at his house, we filled his yard and some of us had to park on the side of the road.

Needless to say, Craig was surprised!! He was not expecting all of us. He was expecting one man to show up and take him for a ride. He was presented with his very own biker vest, a Guardian Angel pin and a cross necklace.

Then it was load ‘em up and ride baby ride. We took him on about an hour long ride through the country on a few curvy roads. Craig did great!! Having to be on oxygen, and all the other stuff the young man is dealing with, we were not sure that he would be able to make that long of a trip. But he did! He is a real trooper and was all smiles at the end of the ride. He went from person to person, shaking hands and thanking them for making his wish come true.